Knowledge is power and research is required for knowledge. For this reason we have decided to support the My Name’5 Doddie Foundation. The foundation was established by Doddie Weir and the trustees in response to his frustration at the lack of options given to MND sufferers – “no effective treatment, no access to meaningful clinical trials and no hope” – the exact situation that we also found ourselves in.
In their words –
We could have given our funds to existing charities and bodies to invest on our behalf, but we wanted to be able to make our own decisions and direct funds to where we felt they could have the biggest impact.
With this in mind, we reached out to leading neuroscientists, professors and medical researchers and invited them to become part of our Advisory Panel. We now regularly engage with the research community to seek their advice and to help us better understand MND and work towards finding a cure. with our fund raising efforts.
For the exact same reasons we have decided to support the trust with our Three Peaks challenge.
We are also keen to help our local community here in Carmarthenshire so part of the funds raised will also go to support the hospice run by the multi-faith community at Skanda Vale. The independent hospice was founded in 1993 and the team is made up, almost entirely, of highly skilled volunteers.